Our client faced high discontinuation rates among pediatric patients with a rare liver disease despite demonstrated clinical benefits. They needed to understand the caregiver decision-making factors leading to treatment abandonment.

The Client:

• Required insights on treatment burden perceptions, logistical challenges, and emotional considerations affecting persistence
• Needed to differentiate experiences between caregivers who continued therapy versus those who discontinued
• Sought to explore the role of peer networks and digital communities in shaping caregiver behaviors and support-seeking
• Lacked a comprehensive framework to design interventions improving treatment retention